The Official Home of DSGB

Disclaimer: DSGB accepts no liability arising from inaccuracy of  information provided.

  • to alleviate the suffering from Familial Dysautonomia in any way
  • to raise public awareness of the disease
  • to invite and  receive donations for the  above objectives

Welcome to the  official Web site of The  Dysautonomia Society of Great Britain. Our society is an independent charity, registered with the Charity Commission. Our Registration Number is 285399 and  our patron  is Lady Jakobovits. We are the British chapter of the  Dysautonomia Foundation of  the USA.

Our mission is:

Familial Dysautonomia (pronounced “Dys-auto-NOmia”) or FD, is also  known as “Riley-Day syndrome” and “hereditary sensory and autonomic neuropathy type III”. It is a neurodegenerative genetic  disorder primarily affecting individuals  of Ashkenazi Jewish descent.