- To contact DSGB with any query about FD telephone 020 8357 0038 and leave a message. Our chairperson will return the call.
- To contact our organisation’s secretary, telephone 020 8203 3761. We are particularly interested to expand our committee with new members.
- To send a donation to help fund our activities, as described, please send a cheque, payable to DSGB, to our secretary at DSGB, PO Box 17679, London NW4 1WS. We are a Registered Charity No. 285399. Your donation will be greatly appreciated and acknowledged, as we depend on your support.
- To see an FD specialist in the UK, arrange for a referral to Dr. Paul Brogan at Great Ormond Street Hospital, London WC1N 3JH.
- For further enquiries about the treatment of FD, contact the New York Treatment and Evaluation Center, at 001-212-263-7225 or see www.med.nyu.edu/fd
- For information about the Dysautonomia Foundation, New York, see www.familialdysautonomia.org