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- We recently equipped 6 of our FD sufferers each with a High Frequency Chest Wall Oscillator Vest to help clear their lung secretions.
- We have brought over the top FD specialists, Dr. Axelrod from NYU Medical Center and Dr. Maayan from Hadassah Hospital, to conduct annual clinics at Great Ormond Street Hospital and The National Hospital for Neurology & Neurosurgery. An evaluation and action plan is produced for the treatment of each FD patient.
- We have helped FD sufferers gain access abroad to advanced surgical procedures for correcting scoliosis of the spine.
- We have sent therapists to New York to obtain additional training in the treatment of FD patients.
- We finance the purchase of the latest medications from the USA.
- We provide additional therapies and equipment to FD sufferers.
- We provide additional respite and nursing care to FD families.
- We inform the public of the nature of Familial Dysautonomia.
- We actively participate in promoting genetic screening of FD.
